Pheffer Amato Passes Legislation Establishing Adult Cystic Fibrosis Assistance Program

South Queens, NY - Assemblywoman Stacey Pheffer Amato (D-South Queens) passed her legislation, A.3089, to create a program to help those living with Cystic Fibrosis (CF). The bill, created and introduced by the Assemblywoman, would establish a program to reimburse the cost of providing health care or health insurance to eligible individuals who have Cystic Fibrosis.

Over the past years, Assemblywoman Pheffer Amato has worked to provide funding and assistance to those with CF. This bill unifies those efforts, along with those of the advocates. The bill will ensure that those with the rare genetic disease that damages the lungs and digestive system, receive support. It is estimated that Cystic Fibrosis impacts over 1,600 New Yorkers. According to the Cystic Fibrosis Foundation, CF is a mutation in the cystic fibrosis transmembrane conductance regulator (CFTR) gene that causes the CFTR protein to become dysfunctional. When the protein is not working correctly, it’s unable to help move chloride - a component of salt- to the cell surface. Without the chloride to attract water to the cell surface, the mucus in various organs becomes thick and sticky. In the lungs, the mucus clogs the airways and traps germs, like bacteria, leading to infections, inflammation, respiratory failure, and other complications.

“This legislation directly affects the people who need it the most, individuals and their families battling with this disease. It will give those impacted by CF the resources they deserve so they can purchase medication, receive care and live the life they want. It’s been one of my biggest honors to work with the advocates and my neighbors to get this bill over the finish line and create legislation that will save and improve lives,” said Assemblywoman Pheffer Amato.

One of those impacted is Michael Fox of Breezy Point. Michael, along with his amazing mother Gretchen, have worked tirelessly and shined a light on this rare disease. “Passing this bill is tremendous for those New Yorkers struggling due to the substantial financial burden caused by living with cystic fibrosis,” said Michael.

The bill, having passed unanimously in both houses of the State Legislature, now goes to the desk of Governor Kathy Hochul.